Where do we get extra help like a support worker

[superg]

Hello 

 

I am looking for some advice please I have a hidden disability and get financial help but I am really struggling to do even basic tasks. It’s having a big impact on my long term relationship. I need some sort of worker that can support me but I don’t know where to go. I phoned the council and they said they don’t do that. And speak to mental health but I tried and they don’t return my calls.

 

At the moment I am really struggling with my health as doctors won’t listen. I am only in my fourties’ and have some sort of cognitive issue sometimes  even simple tasks challenging. I don’t know where to start I know  there is help out there because people I used to know had it.

 

i appreciate any advice thank you

[honeybee13]

Hi.

 

Is there an organisation that helps people with your disability? They should have information. 

 

HB

[superg]

Thank you I am under mental health as I have adhd but there is know help for that but it’s not the adhd I have some other cognitive issue. I have tried phoning them but they ignore me I am trying to put in a palls complaint. I got transferred somewhere else with out knowing so I will phone the person and try he is a big help.

[honeybee13]

It's worth a try. So you don't have a social worker or a CPN? 

 

You could also try Mind and see what they think. 

 

HB

[adridude]

 

I'm diagnosed and treated for ADHD too.

Your first port of call is your GP. They're the people who need to refer you on. Based on where you are, you'll be assigned to a facility that handles adult ADHD. They will send you some forms that ask what seem to be repetitive questions, and this is where they get their baseline from. This paperwork has no right or wrong answer, so fill it in as you feel fit.

I'm personally with Psychiatry UK, which I find a fabulous service as it's completely online, the staff are amazing and they actually really do over and above what they should be doing. Tell your GP about them. This is their website: https://psychiatry-uk.com/

In terms of aftercare, it's all down to assessments. You need to be seen by someone who specialises in adult ADHD as it's pretty specific.

 

If you're in the London area, another option is SOuth Longon and Maudsley ADHD and ASD Services (outpatients). In short, they're called SLAM. They too are good, so another option is that you can get to your GP.

 

My advice is, coming from someone who has been through and is still going through the system, is:

 

1) Diagnosis: This confirms that you do, in fact, have ADHD, as another condition masquerading as ADHD could exist.For example, ASD can manifest as ADHD.

 

2) After receiving a diagnosis, you must request long-term care.This is a hard one, which I'm fighting at the moment, as the NHS trust will only fund medication OR therapy, not both. But you can ask your GP to apply for an IFR (Individual Request for Funding). And no, I didn't get the IFR round the wrong way. I think it used to be called an "Individual Finding Request." You need to build up A LOT of evidence as to why you need continued care, so get the notes from your wellbeing team at your ADHD support service, keep diaries, make notes, get all the firepower you can muster to present to your GP to pass on for consideration.

From there, I have no idea as I'm waiting for more paperwork to add to my ammunition to give to my GP.

 

... Long-term care will help you with things that throw you off centre, like overwhelming amounts of paperwork, inability to

read, hardships when reading, problems when speaking, etc. When the long-term care starts or is approved, whoever is your case worker can get the ball rolling.

 

3) Another option is to get in touch with your local social services.I can almost guarantee that you need to jump through the first two hoops before social services will even talk to you. I hope this

helps. It's not much, but it's a load of info that's not well documented on the web and took weeks to research!

 

Cheers,

 

A

 

 

Edited February 24, 2022 by adridude