Gp's treatment history for a specific disease ?

[mikv]

I have rare illness / disease that is not easily diagnosed nor accepted as existing by the majority of GPs in the uk ( although it is recognised / has a charity etc ), is there any way then it is possible to find out the number of patients a doctor has - or is currently treating for a specific illness or disease ?

 

( I like in pretty small town so this is why Im asking )

 

thanks,

 

mike

[Feebee_71]

I doubt it. What you might find easier is to find out (probably from the charity) is whether there is a doctor in your area that specialises in care of people with your condition.

 

Feebee_71

[mikv]

I doubt it. What you might find easier is to find out (probably from the charity) is whether there is a doctor in your area that specialises in care of people with your condition.

 

Feebee_71

 

Yup, I'm already waiting to hear from them as I speak.

 

thanks,

 

mike

[nolegion]

I think Feebee's doubt and recommendation are likely to prove correct on both counts.

 

As an 'outside chance', however, you could put in a Freedom of Information request to a GPs practice (in writing, giving name and address for a responsewithin 20 working days) and see what happens. Couldn't do any harm, and you never know…

[mr_mastiff]

Mikv, One or two of the web sites below may help you

 

http://www.findacure.org.uk/

http://www.raredisease.org.uk/experiences-key-stats.htm

http://www.pmlive.com/pharma_intelligence/enabling_access_for_patients_with_rare_diseases_486398

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/215141/dh_132883.pdf

http://www.england.nhs.uk/ourwork/d-com/rdag/

http://www.ema.europa.eu/docs/en_GB/document_library/Other/2010/01/WC500069805.pdf