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Cay14

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  1. Wow! loads of helpful advice, thank you so much. When my HO came to visit me I asked if the HA would put a lift in the block (not just for me, there are other disabled, elderly and young families that would benefit also) she said they wouldn't entertain that - too expensive. So I said about there being a fire and my fear of getting trapped or suing the HA if I had an accident whilst walking up or down the stairs and all responded with was a shrug!! My daughter is my carer, she comes around a couple times a week and has also written a statement. She is 38 weeks pregnant now though so I don't want her doing too much - My 16 year old son calls us hobble and waddle lol I just feel like I'm going round in circles, but I am going to check out that link Mikey, and have a look around the council website etc. I just hate the possibility that I won't be able to return to work, and have to accept that I need help and thanks to finding this website and you great people am a step closer to accepting that my life has to change :-(
  2. Thanks for all the advice, I really am very grateful
  3. Thanks Mikey, I get PIP standard care and have just started getting ESA as my SSP has ended. I will have a look at the 12 point diary. Anything is worth the time and effort as I feel my life is dwindling away in this flat
  4. Thanks Silverfox, Onto it now I know what to look for
  5. I have done that already, I sent a letter from my GP supporting a move and the Rheumatologist report explaining my condition, how it affects me and that specialist physiotherapy is recommended because of my condition. I have sent her a detailed letter on how JHS affects my ability to do day to day activities, how being stuck in my home is making my condition worse and that there are health and safety issues All she said was a report from a social/care worker would help? But I don't have that sort of care and have no idea how to access it. I am stuck in a rut EDIT - Thanks Silverfox and Mikey, This was a reply to Nystagmites post, You both appeared after. I never thought about contacting the Rheumy and asking her to do a supporting letter - Thanks for that suggestion And I will check out Adult services - Thanks again My HO has said that they keep 30% of their housing stock for managed moves - but don't do it on medical grounds Thanks again guys
  6. Morning all, I'm new to the site so please forgive me if I have posted in the wrong section. I am currently signed off work and have been since June 15 with Joint Hypermobility Syndrome, Chronic Pain Syndrome and depression. Recent blood tests also show that I now have (what my GP called) 'A very severe vitamin D deficiency' I am a social housing tenant and live on the top floor of a 2 story block of maisonettes. There is no communal lift in the block and I have to walk up and down over 50 stairs to get in/out of my property. The pain I constantly suffer makes it difficult to move very far or at any speed and I only usually go out to GP appointments. My condition has gotten worse over the past 7 months and I have been moved up a band on the housing register, but am still a good year away before my bidding makes any difference. I have also joined Homeswapper, but unfortunately no joy yet. I approached my housing officer to try and get a managed move due to my condition and she said that the HA no longer accepts managed move requests on medical grounds? Does the HA have a duty of care to move me to a more suitable property? I explained to my HO that I have no quality of life as I am virtually imprisoned in my home. I sleep on the sofa downstairs (which doesn't help my condition) because I have started having panic attacks that there will be a fire in the block during the night and I wouldn't be able to make it out of the property quick enough. My depression is getting worse because of this situation. I asked her for the names of the people responsible for the decision on managed moves so that I could make a complaint, but have not had any response and I would appreciate some advice if possible before contacting them again. If anyone has any advice I will be extremely grateful Thanks, Cay
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